I have recently agreed to make an appearance at a charity event in Sri Lanka (Colombo) in September so I decided to do some of my own research into the rehabilitation center and see how I could possibly help them, starting now.
The disease is Thalassaemia
and the charity is for the establishment of the National Thalassaemia Center at Kurunegala.
"Thalassaemia is a genetically inherited, non curable, but easily preventable disease. It is a heterogeneous group of genetic disorder. The production of normal hemoglobin is partially or completely suppressed in this disease. Treatment for thalassaemia is costly and needs life long therapy. As the disease is inherited, the best way of preventing thalassaemia is avoiding marriages between carriers." -
(http://www.zimbio.com/Sri+Lankan+Models+And+Actress/articles/n01hcF-aDsE/Thalassemia+Rehabilitation+Fund+Sri+Lanka)
Bascially, children with the disorder have to go through dialysis up to twice a day.
It can be very painfully and demoralizing, as Jacquie Mei (my Catwalk Lao Si) tells me.
I realized that apart from sending picture/educational books to the kids, a useful contribution would be nourishment or holistic help someway.
I gathered from reading the Center's mission statements that these patients could benefit significantly from medication such as Vitamin E.
I went on to find this chart stating Palm Oil as one of the best source of Vitamin E.
http://www.tropicaltraditions.com/images/vite.jpg
Anybody have any suggestions or hook ups to help me do this>?
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